PDFs, etc.
Mainly PDF Files (by section of interest)
A) Basic Information for Everyone |
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The
Great Big ABA Opposition Resource List Advocating for Better Treatment of Autistic Individuals Stop ABA, Support Autistics - VERY HIGHLY RECOMMENDED |
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PDA Booklet An excellent booklet all about PDA with practical advice. VERY, VERY HIGHLY RECOMMENDED |
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Pathological
Demand Avoidance Pathological Demand Avoidance - Based on "Children with Pathological Demand Avoidance Syndrome (PDA) a booklet for brothers and sisters" by Julie Davies, Child Development Research Unit, Nottingham University - VERY HIGHLY RECOMMENDED |
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PDA Information Leaflet
and Basic Guide This is a very quick and good guide to the basics of PDA. This PDF file is IDEAL for giving to anyone who is interested - it will give them a primer in PDA which can then be built on as required. - VERY HIGHLY RECOMMENDED |
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An examination of the behavioural
features associated with PDA using a semi-structured
interview Adapted from Elizabeth O'Nions' PhD thesis (submitted September 26th 2013), Institute of Psychiatry, King's College London. - VERY HIGHLY RECOMMENDED - an exceptional piece of example-supported work on PDA behaviour |
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What is pathological
demand avoidance (PDA)? To help clarify what PDA really is - the linked article may really help - from the NAS website - HIGHLY RECOMMENDED |
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Avoiding the
subject
HIGHLY
RECOMMENDED This article is from SEN Magazine (issue 69, March/April 2014. www.senmagazine.co.uk). |
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Pathological demand avoidance
syndrome: a necessary distinction by E Newson, K Le Marechal, and C David |
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Diagnosing PDA within the current
official guidelines (Updated August 2017) We often get asked, "Is PDA available as a diagnosis because some professionals say it isn't in the manuals?" and similar questions. To try and help understand the situation, the PDF file attached is a simple explanation of the current 'state of play' within the diagnostic community (Thanks to Tom Crellin for explaining it so well) |
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Pathological
Demand Avoidance Syndrome: a reference booklet for
clinicians Whilst the booklet is primarily aimed at healthcare professionals, it does contain information that parents and educational professionals would find useful. |
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Does My Child
Present with PDA Profile of ASD? This is a general guide for parents to help them establish if their child is presenting with a typical presentation of an autism spectrum disorder (ASD) such as Asperger's Syndrome or Pathological Demand Avoidant (PDA), which is a different profile of autism, seen in some individuals on the spectrum. N.B. This guide is by no means exhaustive and there will always be exceptions to the rule. |
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Diagnosing PDA within the current
official guidelines (Updated August 2017) We often get asked, "Is PDA available as a diagnosis because some professionals say it isn't in the manuals?" and similar questions. To try and help understand the situation, the PDF file attached is a simple explanation of the current 'state of play' within the diagnostic community (Thanks to Tom Crellin for explaining it so well) |
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Behavioural Strategy Guide
- VERY HIGHLY
RECOMMENDED
An excellent short (3 pages) strategy guide for dealing with PDA (Thanks to Autism West Midlands for this PDF) |
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PDA Diagnostic
Questionnaire Provides a helpful checklist of topics to cover when helping to assess your child, or when any professionals want more information - Well worth printing and filling in for your own child - HIGHLY RECOMMENDED |
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Is it possible for children to
display different behaviours at home compared to school? A superb, and succinct, answer by Dr Luke Beardon, which can give hope to many parents who feel school simply do not understand the differences in behaviour between home and school from the same child - VERY HIGHLY RECOMMENDED |
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Cerebra written Disability Living
Allowance (DLA) guide |
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Fragile World on The Spectrum Very helpful insight on what having autism feels like when things get stressful |
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Pathological demand avoidance
syndrome: a necessary distinction within the pervasive
developmental disorders by E Newson, K Le Marechal, and C David |
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Teacher's
Guide Leaflet A Teacher's Guide to Understanding Pathological Demand Avoidance (PDA) - Part of the Autism Spectrum + Tips for supporting a child in the classroom + Recommended reading & useful links + Characteristics of the PDA Profile + Implications for education & teaching staff - VERY HIGHLY RECOMMENDED |
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PDA in school Tigger Pritchard outlines how to support children with Pathological Demand Avoidance (PDA) - VERY HIGHLY RECOMMENDED |
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The Teacher's Introduction to
Pathological Demand Avoidance Essential Strategies for the Classroom This essential guide for working with PDA pupils outlines effective and practical ways that teachers and school staff can support these pupils, by endorsing a child-led approach to learning and assessment. |
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Collaborative
Approaches to Learning for Pupils with PDA Ruth Fidler and Phil Christie outline effective strategies for supporting pupils with PDA in education settings. |
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Special Educational Needs for PDA This outlines the signs of PDA and the strategies parents and schools can employ to deal with it. Pathological Demand Avoidance (PDA) is characterised by an extreme avoidance of everyday demands and an anxiety-driven need to be in control. - VERY HIGHLY RECOMMENDED |
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Positive PDA booklet Simple Strategies for Supporting Children with Pathological Demand Avoidance at School, by Zoe Syson and Dr Emma Gore Langton - VERY HIGHLY RECOMMENDED |
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Is it possible for children to
display different behaviours at home compared to school? A superb, and succinct, answer by Dr Luke Beardon, which can give hope to many parents who feel school simply do not understand the differences in behaviour between home and school from the same child - VERY HIGHLY RECOMMENDED |
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Diagnosing PDA within the current
official guidelines (Updated August 2017) We often get asked, "Is PDA available as a diagnosis because some professionals say it isn't in the manuals?" and similar questions. To try and help understand the situation, the PDF file attached is a simple explanation of the current 'state of play' within the diagnostic community (Thanks to Tom Crellin for explaining it so well) |
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A letter to a teacher, from their
special needs pupil This is poignant, touching and is well worth reading, especially by anyone in the teaching profession who ever comes into contact with children who have Special Needs, Additional Support Needs, or otherwise require specialised input to help them learn - VERY HIGHLY RECOMMENDED |
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The Autistic Spectrum - Approaches
to facilitate inclusion in mainstream schools By Hampshire County Council, Children's Services Department, SEN Service RECOMMENDED |
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An examination of the behavioural
features associated with PDA using a semi-structured
interview Adapted from Elizabeth O'Nions' PhD thesis (submitted September 26th 2013), Institute of Psychiatry, King's College London. - VERY HIGHLY RECOMMENDED - an exceptional piece of example-supported work on PDA behaviour |
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The Distinctive Clinical and
Educational Needs of Children with Pathological Demand
Avoidance Syndrome: Guidelines for Good Practice (by Phil Christie) - WORTH READING - TO KNOW THE OFFICIAL CRITERIA FOR PDA The official proof of PDA existence, from the Autism Education Trust (part of the UK's Department of Education). Includes the following chapters:- Criteria for Pathological Demand Avoidance syndrome, Diagnosis and classification, Implications for education and management, The child as a learner, Teaching style and approach, Support needs of staff and the family, References |
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Education and Handling
Guidelines A primer on teaching a child with PDA, written by the professionals at the Elizabeth Newson Centre in Nottingham. |
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How does PDA present in a
Play Based Assessment? |
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Pathological demand avoidance
syndrome: a necessary distinction within the pervasive
developmental disorders by E Newson, K Le Marechal, and C David |
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Pathological
Demand Avoidance Syndrome A Reference Booklet for Health, Education and Social Care Practitioners:- Whilst the booklet is primarily aimed at healthcare professionals, it does contain information that parents and educational professionals would find useful. |
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What is pathological
demand avoidance (PDA)? To help clarify what PDA really is - the linked article may really help - from the NAS website - HIGHLY RECOMMENDED |
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An examination of the behavioural
features associated with PDA using a semi-structured
interview Adapted from Elizabeth O'Nions' PhD thesis (submitted September 26th 2013), Institute of Psychiatry, King's College London. - VERY HIGHLY RECOMMENDED - an exceptional piece of example-supported work on PDA behaviour |
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New resource for clinicians |
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Diagnosing PDA within the current
official guidelines (Updated August 2017) We often get asked, "Is PDA available as a diagnosis because some professionals say it isn't in the manuals?" and similar questions. To try and help understand the situation, the PDF file attached is a simple explanation of the current 'state of play' within the diagnostic community (Thanks to Tom Crellin for explaining it so well) |
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Paper on the new PDA
questionnaire (the EDA-Q) |
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Cerebra Pathological Demand Avoidance Syndrome (PDA) More collated info on PDA. |
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Diagnosing
PDA
within
the
current
official
guidelines
(Updated
August
2017)) |
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Template
letter to school re PDA awareness
VERY
HIGHLY RECOMMENDED |
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Template
for letter to send to GP
VERY
HIGHLY RECOMMENDED |
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Pathological Demand Avoidance
Syndrome - Amazon link - My Daughter Is Not Naughty (A parent's personal perspective) Jane Sherwin's honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA) - VERY HIGHLY RECOMMENDED, (and often held as the 'new bible' for living with a child with PDA) Also sold on book depository and shipped for free to many countries. So really helpful for those of you in non-English speaking countries. Book Depository link is HERE |
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Can I tell you about Pathological
Demand Avoidance Syndrome (A guide for friends, family and professionals) This illustrated book is for readers aged 7 and upwards, and will be an excellent way to increase understanding about PDA in the classroom or at home. It also includes practical tips and recommended resources for parents and professionals. Written by Ruth Fidler and Phil Christie - VERY HIGHLY RECOMMENDED Book Depository link is HERE |
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Understanding Pathological Demand
Avoidance Syndrome in Children (A Guide for Parents, Teachers and Other Professionals) Written by Phil Christie, Margaret Duncan, Ruth Fidler and Zara Healy. A book published by Jessica Kingsley Publishers - the PDA 'Bible' - VERY HIGHLY RECOMMENDED |
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Smart but Scattered The Revolutionary "Executive Skills" Approach to Helping Kids Reach Their Potential by Peg Dawson and Richard Guare. There's nothing more frustrating than watching your bright, talented son or daughter struggle with everyday tasks like finishing homework, putting away toys, or following instructions at school. Your "smart but scattered" child might also have trouble coping with disappointment or managing anger. |
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The Explosive Child (by
Ross Greene) HIGHLY RECOMMENDED -A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children - although not specifically about PDA, there are some helpful guidelines that can help with strategies for PDA children. |
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Why do I have
to? "Why do I have to?" looks at a set of everyday situations that provide challenges for children at home, with their friends, and at school. |
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The Panicosaurus: Managing Anxiety
in Children Including Those with Asperger's Parents and carers will like the helpful introduction, explaining anxiety in children, and the list of techniques for lessening anxiety at the end of the book. |
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Declarative Language Handbook You might be a therapist or a teacher, or you might be a parent, grandparent, or babysitter. Your child might have a diagnosis such as autism, Asperger’s Syndrome, ADHD or Non-Verbal Learning Disability. But they might not. No matter your child’s learning style, this book was written to help you feel equipped to make a difference, simply by being mindful of your own communication and speaking style. HIGHLY RECOMMENDED |
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